Comments on: Online Patient Community Battle for Survival: MDJunction http://blog.highlighthealth.info/social-networks/online-patient-community-battle-for-survival-mdjunction/ Following the Use of Web 2.0 in Health & Medicine Wed, 30 Sep 2009 23:48:40 -0400 http://wordpress.org/?v=2.8.4 hourly 1 By: Beth Martin http://blog.highlighthealth.info/social-networks/online-patient-community-battle-for-survival-mdjunction/comment-page-1/#comment-697 Beth Martin Wed, 30 Sep 2009 23:48:40 +0000 http://blog.highlighthealth.info/?p=259#comment-697 I was a strong user of MDJ for a long time on the Fibromyalgia Group. I ended up quitting simply because it became nothing short of a group of women that liked talking about one another. It is very cliquish and all anyone does on there is either talk about themselves or condemn other people. Fair warning about this site. It is HIGHLY deceptive and I found no support from it at all. When problems are brought to, I think his name is Roy, he does nothing. It is all about drama and gossiping about each other. If you aren't in the few that are in this clique, then you are talked about. Very little speak about the real reasons why you join - it's like being in junior high with a bunch of girl bullies. If you truly need support, I DO NOT recommend MDJ. I was a strong user of MDJ for a long time on the Fibromyalgia Group. I ended up quitting simply because it became nothing short of a group of women that liked talking about one another. It is very cliquish and all anyone does on there is either talk about themselves or condemn other people. Fair warning about this site. It is HIGHLY deceptive and I found no support from it at all. When problems are brought to, I think his name is Roy, he does nothing. It is all about drama and gossiping about each other. If you aren’t in the few that are in this clique, then you are talked about. Very little speak about the real reasons why you join – it’s like being in junior high with a bunch of girl bullies. If you truly need support, I DO NOT recommend MDJ.

]]> By: Not Much Hope for HopeCube | Highlight HEALTH 2.0 http://blog.highlighthealth.info/social-networks/online-patient-community-battle-for-survival-mdjunction/comment-page-1/#comment-658 Not Much Hope for HopeCube | Highlight HEALTH 2.0 Sun, 08 Mar 2009 22:20:47 +0000 http://blog.highlighthealth.info/?p=259#comment-658 [...] community / health-focused social network scene. Many patient communities have been started (e.g. MDJunction) by entrepreneurs who were spurred to create their sites by the difficulties friends or relatives [...] [...] community / health-focused social network scene. Many patient communities have been started (e.g. MDJunction) by entrepreneurs who were spurred to create their sites by the difficulties friends or relatives [...]

]]> By: roy lev http://blog.highlighthealth.info/social-networks/online-patient-community-battle-for-survival-mdjunction/comment-page-1/#comment-629 roy lev Wed, 31 Dec 2008 09:43:40 +0000 http://blog.highlighthealth.info/?p=259#comment-629 Hi Hope & Walter – thanks for covering us and your kind words. I’ve decided to further my omnipresence on to this post as well ;-) We are indeed pleased with the loyalty, level of activity and exponential growth we’ve seen this year & know that it will be even better in 2009. We’re also aware of dead spaces & authority issues within the site. Some of them will be improved as we constantly upgrade the community but others will remain, because above all we see MDJunction as a platform for Patient Empowerment and the patients lead the way. I wish you all a great 2009. roy Hi Hope & Walter – thanks for covering us and your kind words.

I’ve decided to further my omnipresence on to this post as well ;-)

We are indeed pleased with the loyalty, level of activity and exponential growth we’ve seen this year & know that it will be even better in 2009.

We’re also aware of dead spaces & authority issues within the site. Some of them will be improved as we constantly upgrade the community but others will remain, because above all we see MDJunction as a platform for Patient Empowerment and the patients lead the way.

I wish you all a great 2009.
roy

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