Highlight HEALTH 2.0

Welcome to the twenty-seventh edition of Medicine 2.0, the bi-weekly blog carnival of the best posts pertaining to web 2.0 and medicine.

Medicine 2.0 is the science of maintaining and/or restoring human health through the study, diagnosis and treatment of patients utilizing web 2.0 internet-based services, including web-based community sites, blogs, wikis, social bookmarking, folksonomies (tagging) and Really Simple Syndication (RSS), to collaborate, exchange information and share knowledge. Physicians, nurses, medical students and health researchers who consume web media can actively participate in the creation and distribution of content, helping to customize information and technology for their own purposes.

Communication amongst and between healthcare professionals and healthcare consumers is a necessary element to improve health and is critical for the delivery of optimal medical outcomes.

This edition of Medicine 2.0 covers a wide array of posts with one thing in common — Communication.

Web 2.0 Tools and Slideshows

Gunther Eysenbach’s Random Research Rants

Dr. Gunther Eysenbach presents an archiving system for Citing Blogs, Preserving Cited Webpages etc with WebCite.

Clinical Cases and Images

Do you Twitter? Dr. Ves Dimov offers A Doctor’s Opinion: Why I Started Microblogging on Twitter.

Scienceroll

23andMe presented a slideshow recently in Second Life in the latest session of the Scifoo Lives On series. Dr. Bertalan Meskó covers 23andMe in Second Life: LIVE.

Jay Parkinson+ MD + MPH

Dr. Jay Parkinson asks us to Look, posting a presentation from George Halvorson, CEO of Kaiser Permanente, about health reform.

Pharma 2.0

Bunny Ellerin writes about Within3 and the results of a survey at the American Society of Clinical Oncology (ASCO) conference. There’s no doubt that social media is Changing Physician Behavior.

Online Video

Gene Sherpas: Personalized Medicine and You

Dr. Steve Murphy writes about the upcoming second Helix Health CliniCast on genetic testing, genomic medicine and the science of accurate warfarin dosing, asking How’s that for Genomic Medicine by Press Release?

Digital Pathology Blog

The Digital Pathology Blog reports that Mayo Launches YouTube Channel with videos highlighting the latest research and treatment advances at Mayo Clinic.

WSJ Health Blog

The Wall Street Journal Health Blog discusses online doctor consults, announcing that The Doctor Will See You on the Webcam Now.

Information Tools and Tests

College@Home

Many of us might forget there’s other search tools out there besides Google. Laura Milligan provides a comprehensive list of 100 Useful Niche Search Engines You’ve Never Heard Of.

davidrothman.net

David Rothman posts An Evaluation of the Five Most Used Evidence Based Bedside Information Tools in Canadian Health Libraries, a recent study published in the journal Evidence Based Library and Information Practice.

Medgadget

Personalized Medical Search Engine: With Medgadget describes the inclusion of Medgadget in Scienceroll Search, a personalized medical search engine powered by Polymeta.com.

NursingDegree.Net

Jessica Merritt highlights a number of ways to use Google’s Personal Health Record (PHR), offering The Ultimate Guide to Google Health: 60+ Tips and Resources.

Canadian EMR

Digital records and privacy can be a mixed bag. Alan Brookstone reposts the media report UK Health Agency Loses 31,000 Patients Records.

Sharp Brains

Alvaro Fernandez writes about the Brain Age, Posit Science, and Brain Training Topics, reporting both good and bad news regarding the assessment and training of cognitive skills.

Microarray Blog

Albin Paul discusses the options for a Semantic Search Engine for PubMed — Microsoft Vs Yahoo Vs Google Vs Oracle in Semantic Web Search.

Tomographyblog

András Székely discusses TomographyBlogSearch in the Making, describing the SeekRadiology Project, a search engine for diagnostic imaging.

Doctor-patient Communication

Canadian Medicine

Graham Lanktree reviews a study of prepared patients and internet information, which finds that the Web Buoys Doctor-patient Communication.

Medical Economics

Gail Garfinkel Weiss writes how the shift from authority-based medicine to one of shared responsibility is playing out in the exam room in The New Doctor-patient Paradigm.

The iPhone

Dr Penna

Dr. Sreeram Penna provides a list of health care applications currently available for the iPhone in Mobile Medical Software for the Iphone 3g.

Efficient MD

Dr. Joshua Schwimmer also writes about potential applications on the iPhone for doctors in The New 3G iPhone, the App Store, and Doctors.

Conclusion

That concludes the 27th edition of Medicine 2.0. My thanks to everyone who submitted an article. You can find more information about the carnival as well as the hosting schedule and past editions at the Medicine 2.0 Website.

Have you written a blog post about web 2.0 and medicine? Submit it to the next edition of Medicine 2.0 using the carnival submission form.

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The Internet is rapidly transforming healthcare. Not only is it creating new connections for the access, sharing and exchange of information, it is cultivating a new level of knowledge among patients, enabling them to have input into decisions about their healthcare. Indeed, 80% of adult Americans say they have researched at least one specific health topic, either information on exercise and fitness, or information about immunizations or vaccines, online at some point [1]. A 2003 WebMD study found that consumers spent more time researching health information online than any other media source [2].

Unfortunately, with all the credible health information online, an equal or greater amount of misinformation also exists. An article in the Economist last year discussed the exponential increase in user-generated content, encouraged by sites such as YouTube, Facebook and Wikipedia, and its affect on healthcare [3]. The article concluded by quoting a professor at Harvard Medical School:

Many doctors, he says, “don’t get the wisdom of crowds.” But he thinks the combined knowledge of a crowd of his patients would be far greater than his own.

However, the trouble with “The Wisdom of Crowds” or “Crowdsourcing” is that a group of people connected by a network doesn’t necessarily mean they will work together as or more effectively than in traditional organizations.

… Quite simply, not all crowds are wise.

In his book “The Wisdom of Crowds”, James Surowiecki wrote the following [4]:

The smartest groups are made up of people with diverse perspectives who are able to stay independent of each other. Independence doesn’t imply rationality or impartiality. You can be biased and irrational, but as long as you’re independent, you won’t make the group any dumber.

A study published in the Journal of the American Medical Association examined “The Wisdom of Crowds” by evaluating YouTube as a source of information on immunization [5]. University of Toronto researchers searched YouTube using the keywords “vaccination” and “immunization”, and measured users interaction with the videos using view counts and viewer reviews indicated by the star-rating system. Scientists evaluated 153 videos:

• 73 (48%) of the videos were positive, meaning the central message of the video supported immunization (e.g. described the benefits and safety of immunizing, described immunization as a social good, or encouraged people to receive immunizations).
• 49 (32%) of the videos were negative, meaning the central message of the video portrayed immunization negatively (e.g. emphasized the risk of immunization, advocated against immunizing, promoted distrust in vaccine science, made allegations of conspiracy or collusion between supporters of vaccination and manufacturers).
• 31 (20%) of the videos were ambiguous, meaning the video contained either a debate or was ambivalent.

Although almost half the videos were positive and only 20% were negative, compared with positive videos, negative videos were more likely to receive a rating, had a higher mean star rating and more views.

The videos were then rated for scientific accuracy based on the 2006 Canadian Immunization Guide, which has recommendations similar to those from the American Centers for Disease Control and Prevention. None of the positive videos contradicted the Guide. However, nearly half of the negative videos (22 of 49; 45%) carried messages that did contradict the Guide. These included messages that general childhood immunization can cause autism and that scentific research supports the link between thimerosal and autism. However, perhaps the most striking data from the study was that, among the positive videos, public service announcements received the lowest mean ratings and the fewest views.

The authors comment at the end of the study that:

The video ratings and view counts suggest the presence of a community of YouTube users critical of immunization.

And that community of YouTube users is growing rapidly. According to a December 2007 report by the Pew Internet & American Life Project, the typical share of internet users going to video sites was nearly twice as large as it was in December 2006 [6].

With the pervasiveness of blogs and RSS on the Internet today, content has become a commodity. Indeed, “information overload” tends to be everywhere. With too much information and not enough time, capturing an audience’s attention is paramount. Everyone has heard the cliché: “Content is King”. In the age of Web 2.0 and YouTube, packaging, not content, has clearly become King. This is the message public health authorities and others trying to communicate accurate health information need to pay attention to: it’s not just what you say, it’s how it’s presented.

References

1. Fox S and Fallows D. Internet Health Resources: Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access. Pew Internet & American Life Project. 2003 July 16.
2. Research Reveals That Internet Has Become Primary Means by Which Consumers Access Health Information. WebMD press release. 2003 Feb 10.
3. Health 2.0. The Economist. 2007 Sep 6.
4. Suroweicki J. (2004). The Wisdom of Crowds: Why the Many Are Smarter Than the Few and How Collective Wisdom Shapes Business, Economies, Societies and Nations. Boston: Little, Brown, Boston.
5. Keelan et al. YouTube as a source of information on immunization: a content analysis. JAMA. 2007 Dec 5;298(21):2482-4. DOI: 10.1001/jama.298.21.2482
   View abstract
6. Rainie L. Increased Use of Video-sharing Sites. Pew Internet & American Life Project. 2008 Jan 9.

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People are connected to other people - their family, friends and co-workers - in what are called social networks. In its simplest form, a social network is a map made up of nodes representing individuals and the connections or ties between them (see figure at right). Even as late as 2004, social networks and collateral health effects were largely ignored in medical care and clinical trials [1]. However, more recently social networks have been gaining increasing attention in healthcare and medicine [2].

Why the increased attention?

When a patient receives medical interventions, there may be unintended health effects in that patient’s social network, i.e. other people to whom that patient is connected. For example, treating a heart attack may cause the patient’s children to change their dietary habits, improving their health and possibly improving their future medical outlook. Knee replacement surgery may allow a wife to better care for her husband, thus improving his health. Helping someone lose weight may influence that persons friends to also lose weight. Indeed, recent scientific studies, two of which are described below, are finding that social networks are quite relevant to health.

Social network studies and health

The prevelance of obesity in the U.S. is increasing [3]. An analysis of the nature and extent of the person-to-person spread of obesity was published recently with surprising results [4]. Researchers found that an individual’s chances of becoming obese increased by 57% if they had a friend who became obese. However, the type of friendship was an important variable: persons in closer, mutual friendships have more of an effect on each other than persons in other types of friendships. Adult siblings also influenced one another, increasing the chance of obesity by 40%. The risk of becoming obese increased by 37% if an individual’s spouse became obese.

Additionally, the sex of friends and siblings was also important [4]:

… pairs of friends and siblings of the same sex appeared to have more influence on the weight gain of each other than did pairs of friends and siblings of the opposite sex. This finding also provides support for the social nature of any induction of obesity, since it seems likely that people are influenced more by those they resemble than by those they do not. Conversely, spouses, who share much of their physical environment, may not affect each other’s weight gain as much as mutual friends do; in the case of spouses, the opposite-sex effects and friendship effects may counteract each another.

The authors note that while connected individuals may share common exposure elements (e.g. environmental factors, experience of simultaneous events, genes) that cause people to gain or lose weight simultaneously, their observations suggest an important role for a process involving the introduction and person-to-person spread of obesity. The study results suggest that the acceptance of obesity can spread through social networks. The change in the acceptance of obesity may alter behavior and affect a person’s food consumption.

Another recent study examined how a spouse’s illness or death affects the subsequent risk of death of their partner. Perhaps the strongest link in a social network, a spouse’s death was found to increase their partner’s chance of premature death by about 20 percent [5]. In fact, the danger to a partner can be much higher within the first month of a spouse’s hospitalization that marks the beginning of a serious or chronic illness. According to the study authors, rising risk months or years later may reflect a decrease in social support.

Social network ties may indeed have unintended health effects in other people to whom a patient is connected. The effects may be positive or negative. An editorial in the British Journal of Medicine [1] a few years ago suggested that:

Doctors, trialists, patients, or policy makers might see reason to take them [the sum of the direct health outcome in the patient and the collateral health effects in others] into account when choosing treatment or evaluating benefit.

Web 2.0, healthcare and medicine

The first incarnation of the web, which we now call web 1.0, has been summed up as essentially all about commerce, while web 2.0 is almost all about people and participation [6]. Web 2.0 services, including social networking services, blogs, collaborative filtering, social bookmarking, taging, instant messaging and online tools specifically designed for health search will likely change healthcare as we know it today. These same technologies are expected to play an important role in the future of medicine for physicians and scientists as well as patients. Indeed, a recent review of emerging web 2.0 social networking technologies and software [7] suggests that:

… careful thinking, testing and evaluation research are still needed in order to establish ‘best practice models’ for leveraging these emerging technologies to boost our teaching and learning productivity, foster stronger ‘communities of practice’, and support continuing medical education/professional development (CME/CPD) and patient education.

A blog carnival highlighting posts between web 2.0 and medicine, Medicine 2.0, is currently published biweekly. Still a term to be precisely defined, Medicine 2.0 is the science of maintaining and/or restoring human health through the study, diagnosis and treatment of patients utilizing web 2.0 internet-based services, including web-based community sites, blogs, wikis, social bookmarking, folksonomies (tagging) and Really Simple Syndication (RSS), to collaborate, exchange information and share knowledge. Physicians, nurses, medical students and health researchers who consume web media can actively participate in the creation and distribution of content, helping to customize information and technology for their own purposes.

The tenth, jubilee edition of the Medicine 2.0 blog carnival was hosted right here on the Highlight HEALTH Web Directory Blog. There, you’ll find links to many articles that discuss Web 2.0 in health and medicine.

Health 2.0 - social networking services and health

More generally, web 2.0 empowers everyone in healthcare. The Health 2.0 wiki defines Health 2.0 as:

New concept of healthcare wherein all the constituents (patients, physicians, providers, and payers) focus on healthcare value (outcomes/price) and use competition at the medical condition level over the full cycle of care as the catalyst for improving the safety, efficiency, and quality of health care.

In this context, Health 2.0 extends far beyond social networking. However, according to The Health Care Blog,

Our definition [of Health 2.0] is currently focusing on user-generated aspects of Web 2.0 within health care but not directly interacting with the mainstream health care system.

This means things like health search, communities (online social networks) and tools for individual and group consumer use.

What are online social networks? An online social network is a relatively new type of virtual community that is designed to allow members to build relationships with other members of the community. Web 2.0 empowers users, encouraging members to create content online to be shared with other readers. Users can post information on their profile page that is accessible by other members of the community. Additionally, these social networks also typically offer the ability to create additional personal web pages - blogs, image galleries, video clips - that help to build relationships with other members.

According to a survey by Manhattan Research, 9.9 million consumers, in addition to reading weblogs, regularly post health information online and learn from each other [8]. People are clearly using these tools.

Over the coming months, a series of review articles will be published here on the Highlight HEALTH Web Directory Blog describing a number health-focused social networks, what they have to offer and how they can affect your health. New material will also be announced on Highlight HEALTH.

If there’s a social health network you’re interested in learning more about, send me a message and let me know.

References

1. Christakis NA. Social networks and collateral health effects. BMJ. 2004 Jul 24;329(7459):184-5.
   View abstract
2. Barabási AL. Network medicine–from obesity to the “diseasome”. N Engl J Med. 2007 Jul 26;357(4):404-7. Epub 2007 Jul 25.
   View abstract
3. The United Health Foundation’s 2006 edition of “America’s Health Rankings: A Call to Action for People and Their Communities”.
4. Christakis and Fowler. The spread of obesity in a large social network over 32 years. N Engl J Med. 2007 Jul 26;357(4):370-9. Epub 2007 Jul 25.
   View abstract
5. Christakis and Allison. Mortality after the hospitalization of a spouse. N Engl J Med. 2006 Feb 16;354(7):719-30.
   View abstract
6. Barsky and Purdon. Introducing Web 2.0: social networking and social bookmarking for health librarians. Journal of Canadian Health Library Association 2006, 27, 7-8.
7. Kamel Boulos and Wheeler. The emerging Web 2.0 social software: an enabling suite of sociable technologies in health and health care education. Health Info Libr J. 2007 Mar;24(1):2-23.
   View abstract
8. Forecasting the Future: Consumers 2010. Manhattan Research.

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